Marlene Portnoy co-founded DTRF because of the frustration she experienced with the lack of information available and the lack of research on this rare disease. Her husband, Steve, was diagnosed in August 2004 with a retroperitoneal desmoid and has since been treated with surgery and radiation. After graduating magna cum laude from Albany State University in 1981, Marlene pursued a career in sales, which she started at Corning Glass Works from 1982-1985 in Chicago, Illinois. dtrf.org
After graduating magna cum laude from Albany State University in 1981, Marlene pursued a career in sales, which she started at Corning Glass Works from 1982-1985 in Chicago, Illinois. dtrf.org/dtrf_staff.htm
After graduating magna cum laude from Albany State University in 1981, Ms. Portnoy pursued a career in sales, which she started at Corning Glass Works from 1982-1985 in Chicago, Illinois. www.dtrf.org/dtrf_boards.htm
Marlene Portnoy co-founded DTRF because of the frustration she experienced with the lack of information available and the lack of research on this rare disease. Her husband, Steve, was diagnosed in August 2004 with a retroperitoneal desmoid and has since www.dtrf.org/dtrf_staff.htm
